Today is Blogging Against Disablism Day (or BADD for short), and this is my first year participating. For those of you new to my blog and my work, when I’m not running Academic Editing Canada, I’m busy with my independent scholarship in disability studies and science fiction. I recently wrote a post about my disability identification, “Fragments: Disability, Community, and Me,” if you’re curious, and many of the posts on this blog deal with my reflections on being a chronically-ill graduate student, and how that experience informs my research today. I also edit science fiction (SF), and I want to mention some good news right away— because I’m super proud of it—that Accessing the Future, an anthology of disability-themed speculative fiction stories that I co-edited with Djibril al-Ayad, received a starred review from Publishers Weekly!
There are many things that I could write about when it comes to my experiences of ableism, but I thought I’d share some of my observations as an independent scholar invested in bringing disability studies into science fiction studies. At the moment, I am frustrated with the genre academic community's engagement with disability—it is still such a marginalized conversation outside the handful of us who work at this intersection (mostly grad students and recent PhDs).
There are many oversights and microagressions I have witnessed or encountered in my role as scholar and writing about them in any specific detail feels unsafe and “unprofessional.” I know that this is ableism at work. I can say that I have felt devalued in my interactions with a few journal editors. I have made requests for accommodation on presentation times that were entirely ignored. And I’ve had to withdraw an accepted paper at a conference because its scheduling was so mishandled. These are just a few incidences that have affected my ability to fully participate, and I have heard many, many more examples of ableism from my disabled academic friends and peers. It is extremely common to hear, for example, in all kinds of academic and casual conversations, professors using ableist language, like “lame” and “crazy,” to describe unpopular or unusual ideas and people. This language hurts.
Articles addressing disability in any meaningful way are infrequent finds in genre journals—and, if they do appear, most of them are locked behind paywalls where I (and everyone else who lacks access to university journal databases) cannot read them. While I appreciate the difficulty of scheduling large, multi-track conferences, it is frustrating that the few papers about disability are often placed on panels about “otherness” or monstrosity (this has happened twice to me). It seems that genre conferences do not know where to effectively place a disability studies paper and this is a problem. It makes talking about disability in a sustained, critical way (that intersects with feminist, queer, anti-racist, and such other important concerns) that much more difficult.
While Disability Studies is becoming less marginalized in science fiction studies, there is a long way to go for it to move from a momentarily interesting “hot topic” to an actually active and engaged conversation that does not rely on a small handful of people to constantly bring it up. Since I started presenting on disability in SF at conferences (though I am not able to attend more than one or two a year I do follow what’s going on online), I have learned just how new and marginal disability studies is in the academic genre community. For example, the Science Fiction Research Association’s annual conference theme this year is “The SF We Don't (Usually) See: Suppressed Histories, Liminal Voices, Emerging Media.” Although many axes of identification were included in the original call for papers (CFP), there was no mention of disability! It took the wonderful Ria Cheyne to point out its absence before “disability and ability” were added to the CFP. Furthermore, there are no papers, from what I can tell from their conference program, that directly address disability. This is an all too common scenario that I have seen played out too many times.
Additionally, in a practical sense, there needs to be more people talking about disability and calling out ableism because so little is actually happening to improve the working conditions for a countless number of disabled graduate students, adjunct/sessional and tenured faculty, and administrative staff. Just check out some of the stories on PhDisabled (which is an amazing resource for disability recognition and advocacy). Conference organizers need to work harder in ensuring that their venues are fully accessible and in developing clear policies around accommodations for people with disabilities. Journals need to be open access and available on a variety of platforms.
I can’t speak to how other academics are trained in graduate school, but I know that for me, the process of interrogating cultural truths was held up as a foundational goal. I also know that when I see an absence of knowledge, especially one that causes or reinforces existing harm, I feel an obligation to speak up and say, “this is something we need to be talking about.” This is how I feel about the representation of disability in science fiction. There are very few popular SF texts that show realistic depictions of disability, whether it be physical or cognitive disability, chronic illness, or neurodiversity. It is a niche topic in terms of academic study but literature and film (and all media) show us what is and what is not possible. SF is an important place where cultural producers and consumers think through what kinds of lives matter and who gets to take part in creating the future world. I believe that genre scholars have a responsibility to meaningfully and significantly engage with disability—both theoretically and practically—sooner than later.